我應該放棄中醫 重回類固醇懷抱?(異位性 附過敏源檢測報告) - 過敏
By Erin
at 2017-06-25T22:19
at 2017-06-25T22:19
Table of Contents
重度異位性皮膚炎數十年 嚴重時病灶可同時達體表面積65%以上 破皮流血流膿還會感染
七年前之前都是用類固醇在壓
好幾個西醫 對我症狀都很疑惑
離不開類固醇
對我的形容是 身體隨時處在發炎狀態
無法做到"類固醇壓制病情後 慢慢減量"
而且"抗組織胺毫無作用"
七年前開始加看中醫 然後開始戒類固醇 慢慢減量 最後停用類固醇 停看西醫
當然 狀況越來越嚴重 我當作是必經過程 只能忍耐
結果 我他媽忍了七年(抱歉 真的是憤怒又無奈)
七年陸陸續續換了很多中醫師(包含過敏版友及中醫版友推薦的醫師)
配合飲食記錄 完全遵照醫師的忌口清單
老實說 一直沒什麼實質效果
甚至也有中醫師(不只一位)對我的症狀疑惑 說我們都盡力了 實在是沒看過我這種狀況
我就這樣流血流膿又痛又癢 不能工作不好睡覺 鮮少社交沒心情娛樂的過了七年
後來去驗了過敏源
除了西醫師與中醫師的疑惑外
我終於得到第三個疑惑 醫檢師的疑惑
http://imgur.com/7j6Nx9k
http://imgur.com/RQMn8ea
http://imgur.com/GLfG8ke
http://imgur.com/K39Zvtg
http://imgur.com/Ucw6riR
是我見識太少? 還真的沒看過有人這樣過敏的
基本上除了肉 我已經沒什麼可以吃了
但我還是勉強地用這張表 配出均衡?的飲食
還是完全沒效 狀況依舊
一直處在那麼嚴重的情況也不是辦法
我也30出頭了 青春歲月也在病痛折磨中結束
該好好工作了
沒社交 我都自閉的快出精神問題了
經過這沒什麼快樂回憶的七年 我也累了 也開始懷疑一直堅持中醫真的對我的狀況有幫助嗎?
請問版友 如果是您
會選擇重回類固醇懷抱嗎?(可能是一輩子每天用藥的情況 而且很怕越用越重)
或是有沒有推薦台北哪位治療異位性皮膚炎的中醫師
可以接受中醫治療+類固醇壓症狀的?
(這是我比較希望的 之前所有中醫師一律叫我停用類固醇
停用後中藥卻也沒辦法改善我的狀況)
唉~我只想過過正常的生活啊...
--
七年前之前都是用類固醇在壓
好幾個西醫 對我症狀都很疑惑
離不開類固醇
對我的形容是 身體隨時處在發炎狀態
無法做到"類固醇壓制病情後 慢慢減量"
而且"抗組織胺毫無作用"
七年前開始加看中醫 然後開始戒類固醇 慢慢減量 最後停用類固醇 停看西醫
當然 狀況越來越嚴重 我當作是必經過程 只能忍耐
結果 我他媽忍了七年(抱歉 真的是憤怒又無奈)
七年陸陸續續換了很多中醫師(包含過敏版友及中醫版友推薦的醫師)
配合飲食記錄 完全遵照醫師的忌口清單
老實說 一直沒什麼實質效果
甚至也有中醫師(不只一位)對我的症狀疑惑 說我們都盡力了 實在是沒看過我這種狀況
我就這樣流血流膿又痛又癢 不能工作不好睡覺 鮮少社交沒心情娛樂的過了七年
後來去驗了過敏源
除了西醫師與中醫師的疑惑外
我終於得到第三個疑惑 醫檢師的疑惑
http://imgur.com/7j6Nx9k
http://imgur.com/RQMn8ea
http://imgur.com/GLfG8ke
http://imgur.com/K39Zvtg
http://imgur.com/Ucw6riR
是我見識太少? 還真的沒看過有人這樣過敏的
基本上除了肉 我已經沒什麼可以吃了
但我還是勉強地用這張表 配出均衡?的飲食
還是完全沒效 狀況依舊
一直處在那麼嚴重的情況也不是辦法
我也30出頭了 青春歲月也在病痛折磨中結束
該好好工作了
沒社交 我都自閉的快出精神問題了
經過這沒什麼快樂回憶的七年 我也累了 也開始懷疑一直堅持中醫真的對我的狀況有幫助嗎?
請問版友 如果是您
會選擇重回類固醇懷抱嗎?(可能是一輩子每天用藥的情況 而且很怕越用越重)
或是有沒有推薦台北哪位治療異位性皮膚炎的中醫師
可以接受中醫治療+類固醇壓症狀的?
(這是我比較希望的 之前所有中醫師一律叫我停用類固醇
停用後中藥卻也沒辦法改善我的狀況)
唉~我只想過過正常的生活啊...
--
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