媽媽胰臟癌畢業了 - 化療
By Yuri
at 2021-05-18T20:32
at 2021-05-18T20:32
Table of Contents
此篇文長,主要是做紀錄分享
媽媽這一生不曾生過大病,連手術都不曾動過,原以為爸媽可以健康地
過著找到新目標的退休生活。去年10月中下旬得知媽媽常常晚上肚子痛
到睡不著有時痛到背部,10月底安排了胃鏡、大腸鏡、斷層掃描等檢查
最後轉診到長庚經由斷層掃描,醫師判定胰臟長腫瘤,約5公分大小且包
住血管無法動手術且有些微擴散到腹腔。
由於爸媽長年主要傾向中醫養生及中藥治療的方式,因此媽媽不願動刀
做腫瘤切片,不願做化療,怕做化療反而造成反效果,積極的想靠中醫
治療癌症。這段期間是我相當煎熬的其中一段,胰臟癌致死率最高,即
使初期發現能動手術切除且存活率超過5年的不到5%,無法動手術的存活
率平均0.5~1年,做化療或許還有點機會可能可以延長些時間,但又不能
強迫媽媽去做化療,因為擔心日後爸媽會產生早知道就堅持中醫治療不
要化療的想法,所以足足花了一個月的時間溝通及討論,包含相關資訊
的了解及多位中西醫師的建議才讓媽媽安心的接受化療。
11/23照核磁共振檢查是否有擴散到其他部位,11/27報告出來,醫師表示
腫瘤約6.5公分,大了一點,除了腹腔沒有再擴散。12/2 安排住院,12/4
做腫瘤切片,12/9切片報告惡性腫瘤,醫師表示化療原則上先做3個月,
做2週休1週,化療若有效時間剩約1~1.5年,除非腫瘤小到能切除,才有
更長的時間但機率低,化療若無效時間剩約半年。
12/16做第一次化療,施打三合一的化療藥劑,12/17出院,12/28回診,
抽血報告白血球3100但肝指數過高所以無法做第二次化療,醫師表示可能
是腫瘤壓迫到膽管所導致。1/4再回診抽血,膽指仍過高,當日安排住院,
住院期間使用利尿劑嘗試將腹水排出。1/8原本預定做膽管引流手術但照
超音波後仍有腹水無法做膽管引流,改作腹水引流手術。因第一次化療副
作用這幾天開始掉髮,媽媽索性今天把頭髮都剃掉了。
1/11做膽管引流手術要把黃疸降下來,1/14抽血報告,膽指數從10點多降
到5點多,醫師表示要降到3左右才能繼續做化療,1/19膽指數降到3.9但
仍不夠。1/20 膽指數3.8,醫師決定把三合一藥劑拆成兩劑施打,因此今
日先打第二次化療的第一劑。1/22 膽指數4.2,將膽管引流管子換大一點
1/25膽指數3.8,1/27膽指數3.4,施打第二劑。
1/28出院,這次出院後化療的副作用很大,媽媽會喘、有痰、喉嚨痛、吃
不下、睡不好,也已經沒有力氣再回親友的LINE,也開始交代一些事情。
2/3 晚上情況急轉直下,媽媽意識模糊,量不到血壓叫救護車送回醫院進行
施打血漿、營養針、昇壓劑等治療。
2/4跟爸簽放棄插管、電擊急救同意書但急救藥物仍可施打,2/5醫師表示依
據目前情況,可能即便後續各項指數都正常仍評估不適合繼續做化療,轉為
安寧治療。
因為不知道時間還剩多久,我2/4開始跟公司請假,經過3~4天的治療,媽媽
情況轉為穩定,但這次住院媽媽多了鼻胃管跟尿管,加上原本的膽管引流跟
腹水引流,身上總共有4條管。去年底開始媽媽雖然已經都吃不太下,但仍
想用手機看美食節目嘗試增加胃口,目前只能靠灌食為主。
2/10媽媽已經開始不想承受身體的苦痛且喊著明天要回家過除夕,過完除夕
她就想走了。2/11跟醫師討論過,因目前在打抗生素,療程至少需要10~14天
所以半哄著媽媽說過完年再回家,今天除夕夜就買了一點菜跟爸爸一起在病
房陪媽媽度過她最後的一個農曆年。
2/22出院,開始在家全天安寧照護媽媽,依據住院時的情況,按時紀錄血壓
血糖、心跳、膽汁及腹水排量及按時餵食、用藥,插管傷口、褥瘡傷口清理
出院後每兩週會有長庚醫師及護理師到家中做居家護理,更換尿管及鼻胃管
3月中媽媽滿65歲,因此申請長照,經過幾個程序及媒合,安排了一到五,
每天2小時的長照,照護員來了四天,3月底媽媽就善終了。
後來才知道很少癌症患者是在家安寧照護,好在媽媽出院後身體就已經沒甚
麼疼痛,醫師開的止痛藥,都沒用到,只有晚上睡不好,所以要控制鎮定劑
吃的時間及次數,昨天幫媽做完了第七個七,算是圓滿了,感謝版上各資訊
的分享。
雖然圓滿了但目前生活仍無法回到正軌,爸爸因為悲傷所致無法入睡,在媽
媽頭七隔天中風,住院住了快一個月,目前換全天照顧爸爸,帶著爸爸復健。
媽~妳放心,我答應過妳會好好照顧爸的。
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