骨肉瘤路程 - 化療

By Emma
at 2020-01-21T20:47

Table of Contents

今年26歲，骨肉瘤已經全身擴散，想留下一些治療紀錄，雖然我不算很好的例子

從2018年11月開始手有點痠痛，只有去復健科看診，一路復健到2019年覺得不對勁，右手
漸漸抬不起來，還被說是50肩

直到1月去骨科檢查，一拍x光就發現右手骨頭被吃到很薄，醫師馬上安排MRI，確認得到
惡性骨肉瘤，轉診到大醫院進行治療

2月切片且做其他檢查，肺部已有轉移

3月開始化療，打黃藥、小紅莓+白金、ifos，打藥的期間右手腫瘤以肉眼可見的速度在成
長，右手獨自變巨石強森，肺部滿天星，第一次被通知沒救

5月轉診到台北榮總，醫師表示右手要截肢

6月截肢完繼續化療，改成自費健澤+紫杉醇

9月發現自費化療沒效，肺部腫瘤其中一顆大到7公分，並且壓迫到氣管，醫師要我把我時
間做想做的事

10月針對特別肺部大顆的腫瘤進行10次放療，同時停止化療改吃口服標靶藥，福退癌

11月因標靶藥造成傷口癒合不良，為了清創停藥一週，後來發現腳趾突然長一顆瘤，這時
候還很衰的發生氣胸

12月醫師認為腫瘤在擴散，改吃蕾莎瓦，氣胸再度發作，裝引流袋回家持續排氣及排積水

1月檢查胰臟肝臟以及許多皮下組織都有腫瘤，右肺被腫瘤塞住失去呼吸功能已塌陷，建
議進行安寧

現在已經離開醫院回家休息了，家人不願意放棄，還是有吃福退癌，我也很想在家過年，
短期目標是撐過過年，沒意外的話過年完會去安寧病房

癌末的疼痛天天在折磨我，目前只能喝東西，一吃胃就痛，疼痛在晚上特別明顯，只能靠
早上補眠，24小時離不開氧氣

我還在等待奇蹟

--

Tags: 化療

All Comments

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at 2020-01-23T23:41

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at 2020-10-12T06:58

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at 2021-04-28T00:10

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at 2021-05-01T09:17

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at 2021-05-04T22:51

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at 2021-05-19T18:26

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at 2021-05-22T07:49

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at 2021-05-23T17:04

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at 2021-05-26T16:01

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at 2021-05-28T12:27

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at 2021-06-02T07:21

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at 2021-06-03T14:43

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at 2021-06-03T18:42

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at 2021-06-08T18:11

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at 2021-06-10T05:44

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By Annie
at 2021-06-11T18:36

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By Rebecca
at 2021-06-13T23:35

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at 2021-06-16T16:25

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at 2021-06-21T11:21

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at 2021-06-26T02:54

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at 2021-06-29T09:05

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at 2021-07-01T08:59

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at 2021-07-03T09:39

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at 2021-07-05T11:58

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at 2021-07-08T18:05

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at 2021-07-11T22:21

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at 2021-07-15T22:23

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at 2021-07-20T09:03

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at 2021-07-20T13:06

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at 2021-07-20T15:21

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By Lucy
at 2021-07-22T02:04

好年輕 RIP

By Harry
at 2021-07-23T13:27

真的假的？

By Steve
at 2021-07-23T19:26

RIP 辛苦了..

By Quintina
at 2021-07-26T08:37

By Olive
at 2021-07-29T23:28

願奇蹟降臨，勇敢的生命鬥士！！

By Eartha
at 2021-08-01T13:30

抱歉~沒看到推文更新，RIP

By Frederic
at 2021-08-03T16:01

加油，試試練習平甩功，坐著也能練，奇蹟是獻給相信的人
https://youtu.be/lJ-09ET2bb8

By Franklin
at 2021-08-07T02:30

辛苦了...

By Blanche
at 2021-08-09T06:33

By Vanessa
at 2021-08-11T03:41

看了好痛加油

By Elma
at 2021-08-11T15:38

上面有人說原PO去當天使了

By Yuri
at 2021-08-13T11:42

祝福你，一切平安

By John
at 2021-08-13T21:44

加油

By Elizabeth
at 2021-08-16T06:33

R.I.P.

By Susan
at 2021-08-18T02:48

K大安息吧

By Thomas
at 2021-08-23T02:11

加油

By Oliver
at 2021-08-26T13:09

不要放棄！替您集氣！

By Frederic
at 2021-08-27T16:36

真的假的RIP 沒看清楚....

By Cara
at 2021-08-31T07:26

生命無常 K大安息也願K大辛苦的家人節哀

By Suhail Hany
at 2021-09-01T09:11

RIP

By Donna
at 2021-09-02T02:51

RIP

By Yedda
at 2021-09-06T16:22

R.I.P

By Dinah
at 2021-09-07T12:25

祝福妳，南無阿彌陀佛~

By Candice
at 2021-09-11T23:35

祝福您！

By Edward Lewis
at 2021-09-13T11:50

加油，祝一切順利平安

By Todd Johnson
at 2021-09-14T16:23

R.I.P....

By Andy
at 2021-09-14T17:27

加油

By Irma
at 2021-09-19T11:06

R.I.P

By Christine
at 2021-09-21T21:29

南無阿彌陀佛

By Kumar
at 2021-09-26T12:24

RIP

By Frederica
at 2021-09-30T19:39

R.I.P.

By Bethany
at 2021-10-04T05:41

到另外一個世界也要快快樂樂到喔～

By Jake
at 2021-10-05T20:28

RIP

By Yedda
at 2021-10-06T00:20

要快樂

By Kristin
at 2021-10-07T14:40

k大辛苦了

By Hamiltion
at 2021-10-12T13:43

祝福你，加油！

By Daph Bay
at 2021-10-12T14:58

祝福你戰勝！

By Steve
at 2021-10-13T07:00

啊...唉...R.IP

By Lily
at 2021-10-18T06:36

小妹妹，我曾寫封信給你，我想你讀得到，在一年多後的今天
我又想起你，找到這篇文章重溫，願你往生善道，蒙佛菩薩護
念，離苦得樂，南無阿彌陀佛！

By Brianna
at 2021-10-22T12:35

謝謝你的故事我會好好珍惜身邊的人

By Zanna
at 2021-10-26T20:17

感謝妳的故事！真的對我抗癌非常有幫助！謝謝妳的付
出！

骨肉瘤路程 - 化療

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