老婆畢業了 - 化療
By Blanche
at 2022-05-10T20:42
at 2022-05-10T20:42
Table of Contents
我永遠記得2020/12/23那天,
下午下班回家,妳還躺在床上。
我告知妳快來吃飯,不要再躺了,妳回我:妳很暈,暈到想吐。我:晚上還要處理妳娘家第四台的事。
那時都不知道 這是一切的開端。
那年的12/28再度進急診室,CT report 妳腦袋有一個腫瘤 在小腦旁,後有從X-ray 得知妳右下肺也有。我那時也沒意識到問題的嚴重性。
隨著各種檢查報告指出,妳是肺腺癌四期,基因檢測為exon 20 insertion 突變。
2021年初,對腦袋裡的那顆用SBRT處理,而肺部則是用( 泰格莎) 因為它對CNS active 比較有效。
這樣的狀態持續到五月中下旬,發現腦袋裡又再度冒出兩顆。標靶必須停止,醫生也說現行沒藥物可救妳,必須要化療,妳很害怕我知道。
我也很積極的跟國外聯絡,似乎有新藥可以救妳,但它剛在美國上市,台灣要等一陣子。
但台灣有相關的人體試驗,條件需要化療失敗,才可以加入。
妳乖乖的又再一次SBRT外加化療,化療了二個多月後,CEA 指數飆高,chest CT 右肺的腫瘤沒有變小。
於是我們就去參加人體試驗,但經過了一連串檢查 妳的腦袋裡又多四顆,肋骨也轉移。
妳都一直喊疼,但我都不知道怎么幫妳,看了就很難過。
負責人體試驗的醫師說:要把腦袋裡的處理好,最好的方法是WBRT,以決後患再來參加人體試驗的徵選。
我們都很害怕。 放射腫瘤科:四顆還可以處理,也可以處理肋骨處。血液腫瘤科:之前申請的TAK-788恩慈也下來了。
十月底做了第三次SBRT 外加服用恩慈標靶。
跨年夜帶小孩跟妳去台中,我幻想著我們可以一家三口幸褔的過一年了,接下來雖然是挑戰;但至少也是三月後吧!
當妳農曆春節反應頭暈 隱約聽到血流聲,我想死定了,怎來的這麼快。雖即刻安排2/22 CT 及MRI,結果很糟的是腦袋裡太多顆,真的要WBRT 。
我也盡量希望妳在醫院做WBRT ,以防萬一。
新藥的部份,醫師也申請了;另一個國外的恩慈,就等FDA核可。
一切就等妳WBRT 做完,就可以無縫接軌。哪知3/27看妳,妳怎會插著氧氣導管,x-ray 照出來 右肺全白的。
妳得了肺炎,醫生說插管還可以一搏。妳為了要在跟我們有多一點存活時間,也願意插管。
進ICU 後的前兩個禮拜,妳很積極的做脫離呼吸器訓練,也寫下妳會撐下去。我很感動!
但白血球指數仍過高,4/11照了CT 發現妳的癌擴散到肝及整個右肺及左肺一點點,且妳也再度昏迷了。
醫師也表示似乎又有新的肺炎感染,他想要洗腎。
我難過了,這要怎么救?是不是該依照妳的願望DNR ?
醫師表示他會衡量,首先讓妳恢复意識,讓家人看的到有意識的妳。
4/28我帶妹妹去看看 這段日子中最有反應的妳,妳有睜開了眼睛 但沒多久又睡著了。
我知道妳很開心,因為妳最放不下就是她,妳的姐妹及我都在一旁,我們會代替妳的職務,好好陪妹妹長大。
妳似乎也了解,從那天起妳的狀況就越來越糟,醫師也再度確認了妳的意思,妳說不要在投藥維生了。
https://www.facebook.com/100044379341462/posts/547842483371725/
5/3午時 妳終於離開了,
我知道 大家都會難過,但需要一段日子去淡化,妳就無掛礙的去吧!
今天妳火化升天,植葬後 天空飄下細雨,這是我的心情。
妹妹也喊著媽媽勒?
我告訴她 媽媽升天當天使了。
妳不要難過,有事跟我們大家說,我們會陪伴妳身旁長大的。
媽媽則是用另一個型式來陪伴妳。
小孩真好 哭完就睡著了,
大人的考驗正開始。
加油!
依婷老婆 愛妳歐!
-----
Sent from JPTT on my Google Pixel 5.
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Tags:
化療
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