我需要一點時間來忘記自己快要死掉這件 - 抗癌
By George
at 2014-03-10T23:46
at 2014-03-10T23:46
Table of Contents
先生去年2月發現肝癌、4月開刀+栓塞;12月轉移脊椎壓迫神經差一點癱瘓-開刀切除大部分+放療+標靶(蕾莎瓦)
最近追蹤胎兒蛋白有升高(醫生是說說不定還沒吃標靶就已升高、要再抽血看看);肝臟斷層疑似有復發;肺部掃描有疑似一小點
之前血液腫瘤醫生鼓勵我們蕾莎瓦有吃越久效果越好的實例;我問:所謂的吃的久是一兩年嗎?醫生:通常轉移的預後是一年。但你先生的肝臟還很健康,不會那麼短。(是健康檢查發現肝癌而非肝臟病變才發現,且早期發現早期治療)
走出診間,先生就說:我需要一點時間來忘記已經快要死掉這件事。
死亡如影隨形這件事真的是很大的壓迫感;時不時看著我那三歲的老大和十個月的嬰兒、看著他們一天天成長、每天學會一些新事物、但是爸爸將無法看他們長大;家裡的音響/單眼相機只有先生會用、先生已經在打算要給哪位朋友;先生總是打得到蚊子而我打不到;就是一些這樣瑣碎的小事
上週原本的血液腫瘤醫生診間護士來電告知本週回診要換醫生,說實話,我和先生非常害怕。上週回診醫生說如果標靶無法證實有效,我們有三個選擇:嘗試新藥/轉院/安寧
新藥:變數很大
轉院:如果高雄長庚沒有適合的新藥可以去尋求別的醫院是否有;但我相信高雄長庚已經是南部很優良的醫院了、還能轉到哪裡去?(我是鼓勵先生說我們可以去台中/台北就醫,不要放棄希望)
安寧:醫生沒明說、先生上網查資料的意思就是不再治療…
先生是個很豪爽愛交朋友愛講話、沒生病前常找一堆朋友來家喝酒吃肉的人;抗癌之路非常積極、上網查詢非常多資料、甚至國外期刊、醫生都驚訝他懂這麼多。但轉移對他打擊很大…最近跟我說他真的很怕…他怕我和小孩怎麼辦、他怕自己身體逐漸衰敗
在這重要時刻要換醫生,也不知道是好是壞…標靶藥斷了一天…是說,也只能邊走邊看了。希望明天是好消息。希望各位版友一切順利。平安。
--
Sent from my Android
--
最近追蹤胎兒蛋白有升高(醫生是說說不定還沒吃標靶就已升高、要再抽血看看);肝臟斷層疑似有復發;肺部掃描有疑似一小點
之前血液腫瘤醫生鼓勵我們蕾莎瓦有吃越久效果越好的實例;我問:所謂的吃的久是一兩年嗎?醫生:通常轉移的預後是一年。但你先生的肝臟還很健康,不會那麼短。(是健康檢查發現肝癌而非肝臟病變才發現,且早期發現早期治療)
走出診間,先生就說:我需要一點時間來忘記已經快要死掉這件事。
死亡如影隨形這件事真的是很大的壓迫感;時不時看著我那三歲的老大和十個月的嬰兒、看著他們一天天成長、每天學會一些新事物、但是爸爸將無法看他們長大;家裡的音響/單眼相機只有先生會用、先生已經在打算要給哪位朋友;先生總是打得到蚊子而我打不到;就是一些這樣瑣碎的小事
上週原本的血液腫瘤醫生診間護士來電告知本週回診要換醫生,說實話,我和先生非常害怕。上週回診醫生說如果標靶無法證實有效,我們有三個選擇:嘗試新藥/轉院/安寧
新藥:變數很大
轉院:如果高雄長庚沒有適合的新藥可以去尋求別的醫院是否有;但我相信高雄長庚已經是南部很優良的醫院了、還能轉到哪裡去?(我是鼓勵先生說我們可以去台中/台北就醫,不要放棄希望)
安寧:醫生沒明說、先生上網查資料的意思就是不再治療…
先生是個很豪爽愛交朋友愛講話、沒生病前常找一堆朋友來家喝酒吃肉的人;抗癌之路非常積極、上網查詢非常多資料、甚至國外期刊、醫生都驚訝他懂這麼多。但轉移對他打擊很大…最近跟我說他真的很怕…他怕我和小孩怎麼辦、他怕自己身體逐漸衰敗
在這重要時刻要換醫生,也不知道是好是壞…標靶藥斷了一天…是說,也只能邊走邊看了。希望明天是好消息。希望各位版友一切順利。平安。
--
Sent from my Android
--
Tags:
抗癌
All Comments
By Hardy
at 2014-03-12T09:44
at 2014-03-12T09:44
By Lauren
at 2014-03-12T13:05
at 2014-03-12T13:05
By Rosalind
at 2014-03-17T06:16
at 2014-03-17T06:16
By Hardy
at 2014-03-21T19:25
at 2014-03-21T19:25
By Rachel
at 2014-03-24T13:43
at 2014-03-24T13:43
By Rachel
at 2014-03-25T22:36
at 2014-03-25T22:36
By Frederic
at 2014-03-29T21:56
at 2014-03-29T21:56
By Ingrid
at 2014-04-02T07:20
at 2014-04-02T07:20
By Charlie
at 2014-04-02T13:28
at 2014-04-02T13:28
By Valerie
at 2014-04-05T16:08
at 2014-04-05T16:08
By Isabella
at 2014-04-07T12:43
at 2014-04-07T12:43
By Selena
at 2014-04-09T03:56
at 2014-04-09T03:56
By Kelly
at 2014-04-12T10:53
at 2014-04-12T10:53
By Quanna
at 2014-04-15T16:24
at 2014-04-15T16:24
By Robert
at 2014-04-19T06:33
at 2014-04-19T06:33
By Franklin
at 2014-04-21T13:15
at 2014-04-21T13:15
By Quintina
at 2014-04-23T00:20
at 2014-04-23T00:20
By Aaliyah
at 2014-04-26T00:43
at 2014-04-26T00:43
By Erin
at 2014-04-30T17:28
at 2014-04-30T17:28
By Franklin
at 2014-05-05T12:00
at 2014-05-05T12:00
By Hardy
at 2014-05-07T08:44
at 2014-05-07T08:44
By Mary
at 2014-05-08T18:51
at 2014-05-08T18:51
By Sierra Rose
at 2014-05-10T22:51
at 2014-05-10T22:51
By Xanthe
at 2014-05-15T09:05
at 2014-05-15T09:05
By Hamiltion
at 2014-05-18T11:51
at 2014-05-18T11:51
By Elma
at 2014-05-19T13:10
at 2014-05-19T13:10
By Genevieve
at 2014-05-20T02:35
at 2014-05-20T02:35
By Cara
at 2014-05-20T07:09
at 2014-05-20T07:09
By Emma
at 2014-05-23T12:41
at 2014-05-23T12:41
By Michael
at 2014-05-25T23:55
at 2014-05-25T23:55
By Zanna
at 2014-05-29T11:42
at 2014-05-29T11:42
By Erin
at 2014-05-31T03:15
at 2014-05-31T03:15
By Oscar
at 2014-06-03T16:03
at 2014-06-03T16:03
By Joseph
at 2014-06-05T11:55
at 2014-06-05T11:55
By Heather
at 2014-06-05T22:26
at 2014-06-05T22:26
By Eden
at 2014-06-10T04:28
at 2014-06-10T04:28
By Catherine
at 2014-06-14T11:48
at 2014-06-14T11:48
By Delia
at 2014-06-17T23:15
at 2014-06-17T23:15
By Franklin
at 2014-06-20T23:40
at 2014-06-20T23:40
By Gilbert
at 2014-06-24T19:15
at 2014-06-24T19:15
By Iris
at 2014-06-26T13:50
at 2014-06-26T13:50
By Ophelia
at 2014-06-28T03:03
at 2014-06-28T03:03
By Edwina
at 2014-06-28T17:24
at 2014-06-28T17:24
By Zora
at 2014-06-29T15:26
at 2014-06-29T15:26
By William
at 2014-07-02T12:53
at 2014-07-02T12:53
By Tristan Cohan
at 2014-07-05T21:14
at 2014-07-05T21:14
By Megan
at 2014-07-06T05:12
at 2014-07-06T05:12
By Zora
at 2014-07-07T19:18
at 2014-07-07T19:18
By Catherine
at 2014-07-11T15:59
at 2014-07-11T15:59
By Rebecca
at 2014-07-15T09:41
at 2014-07-15T09:41
By Kelly
at 2014-07-16T22:00
at 2014-07-16T22:00
By James
at 2014-07-18T21:43
at 2014-07-18T21:43
By Jessica
at 2014-07-22T05:24
at 2014-07-22T05:24
By Mason
at 2014-07-26T09:11
at 2014-07-26T09:11
By Jessica
at 2014-07-29T07:28
at 2014-07-29T07:28
By Quintina
at 2014-07-31T13:45
at 2014-07-31T13:45
By Tom
at 2014-08-02T20:01
at 2014-08-02T20:01
Related Posts
魔髮部屋醫療假髮申請 詳情洽台癌基金會
By Hardy
at 2014-03-10T10:15
at 2014-03-10T10:15
轉其他家醫院的安寧病房
By Olga
at 2014-03-08T16:07
at 2014-03-08T16:07
[買賣」亞培葡勝納 高雄屏東一(市)火車站
By Megan
at 2014-03-07T15:34
at 2014-03-07T15:34
請問白藜蘆醇何處可購得?
By Andrew
at 2014-03-06T00:18
at 2014-03-06T00:18
請推薦輸尿管癌的醫生
By Noah
at 2014-03-05T23:39
at 2014-03-05T23:39