我要挑戰骨髓移植了 - 化療
By Ula
at 2011-01-12T14:34
at 2011-01-12T14:34
Table of Contents
昨天被轉到普通病房了,環境比較起來,
我只能說:移植病房實在是太舒適了,而且重點是安全><
由於同間病房病友的因素,讓我覺得在普通病房總有種不自在感,
看到他不斷地咳嗽(主治醫院說那只是老人家一般的咳嗽,無關感染),
就一直覺得怕怕的,再加上他和陪病的家屬(還好幾位><)都不戴口罩,
在無法要求別人的情況之下,只能自己口罩戴牢一些了,
至於單人房要排到,感覺還真是奢想,應該出院前都排不到吧……
由於移植病房的護士小姐專業又親切,所以現在回想起來,
在打化療的那個星期,好像也沒有太大的不舒服(很不舒服就打一針睡覺><),
再加上速養療、自費止吐藥等等,都不計成本地花了下去,
很幸運也沒有嘴破、嘔吐,最後只是人變虛弱沒精神而已
移植的過程,比較令人擔心的是,我的donor捐贈的幹細胞不足的問題,
只有原先需要量的1/4,醫療團隊很擔心會有長不起的問題,
於是就又再慈濟做了一次配對,配到了二袋臍袋血,
而為了確認臍袋血資料是否確實符合,還又多花了二萬多的檢驗費,
最後又很幸運,donor的幹細胞順利在我的骨髓裡住了下來,
白血球也長了起來(那二萬多....就當善款吧),
附於一提我的幹細胞輸注日期是2010/12/25,很好記的吧,
以後聖誕節,也是我的另一個生日了:)
接下來就是觀察GVHD以及血球的生長狀況,
血小板實在是生得慢,用得快,現在還是處於二、三天就會低於20K,
必須輸血小板的狀態(輸血小板還好,可是從手上的IV打抗過敏針實在好痛)
希望自己接下來繼續順順利利,早日出院!
祝福大家健健康康!感謝所有我認識不認識給我鼓勵的朋友們!
--
我只能說:移植病房實在是太舒適了,而且重點是安全><
由於同間病房病友的因素,讓我覺得在普通病房總有種不自在感,
看到他不斷地咳嗽(主治醫院說那只是老人家一般的咳嗽,無關感染),
就一直覺得怕怕的,再加上他和陪病的家屬(還好幾位><)都不戴口罩,
在無法要求別人的情況之下,只能自己口罩戴牢一些了,
至於單人房要排到,感覺還真是奢想,應該出院前都排不到吧……
由於移植病房的護士小姐專業又親切,所以現在回想起來,
在打化療的那個星期,好像也沒有太大的不舒服(很不舒服就打一針睡覺><),
再加上速養療、自費止吐藥等等,都不計成本地花了下去,
很幸運也沒有嘴破、嘔吐,最後只是人變虛弱沒精神而已
移植的過程,比較令人擔心的是,我的donor捐贈的幹細胞不足的問題,
只有原先需要量的1/4,醫療團隊很擔心會有長不起的問題,
於是就又再慈濟做了一次配對,配到了二袋臍袋血,
而為了確認臍袋血資料是否確實符合,還又多花了二萬多的檢驗費,
最後又很幸運,donor的幹細胞順利在我的骨髓裡住了下來,
白血球也長了起來(那二萬多....就當善款吧),
附於一提我的幹細胞輸注日期是2010/12/25,很好記的吧,
以後聖誕節,也是我的另一個生日了:)
接下來就是觀察GVHD以及血球的生長狀況,
血小板實在是生得慢,用得快,現在還是處於二、三天就會低於20K,
必須輸血小板的狀態(輸血小板還好,可是從手上的IV打抗過敏針實在好痛)
希望自己接下來繼續順順利利,早日出院!
祝福大家健健康康!感謝所有我認識不認識給我鼓勵的朋友們!
--
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化療
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