我要挑戰骨髓移植了 - 化療

By Susan
at 2010-12-19T13:57
at 2010-12-19T13:57
Table of Contents
我是CML的患者,雖然很清楚遲早要面對骨髓移植這一關,
但總是會希望能夠遲一些
目前上市的標靶藥物,我全都吃過了,
基利克吃了四年,泰息安吃了半年,柏萊吃了二年多,
但最近基因似乎又突變了,柏萊也愈來愈發揮不出效果,
主治醫生建議在還沒有真的變不好前,進行骨髓移植
我的二個妹妹配對都與我不合,而且一個是一半,
一個是連一半都沒有,也難怪兄妹那麼容易吵架了,
原來是骨子裡就不合了....
而慈濟骨髓資料庫那邊,從發病以來,也一直有在找,
但都沒有適合的donor,本來計劃是用媽媽的(一半相合),
這時候卻有了好消息,慈濟骨髓資料庫那邊找到了適合的donor,
而donor也是個大好人,願意捐贈給我
發文的現在已經是進到移植室的第三天了,
也進行了二次的化療(之前都只有吃標靶藥物,沒打過化療><),
目前感覺還可以,除了頭會昏昏重重的
我要繼續有信心、有勇氣地面對接下來的挑戰,
為了恢復健康,這點苦不算什麼的:)
--
但總是會希望能夠遲一些
目前上市的標靶藥物,我全都吃過了,
基利克吃了四年,泰息安吃了半年,柏萊吃了二年多,
但最近基因似乎又突變了,柏萊也愈來愈發揮不出效果,
主治醫生建議在還沒有真的變不好前,進行骨髓移植
我的二個妹妹配對都與我不合,而且一個是一半,
一個是連一半都沒有,也難怪兄妹那麼容易吵架了,
原來是骨子裡就不合了....
而慈濟骨髓資料庫那邊,從發病以來,也一直有在找,
但都沒有適合的donor,本來計劃是用媽媽的(一半相合),
這時候卻有了好消息,慈濟骨髓資料庫那邊找到了適合的donor,
而donor也是個大好人,願意捐贈給我
發文的現在已經是進到移植室的第三天了,
也進行了二次的化療(之前都只有吃標靶藥物,沒打過化療><),
目前感覺還可以,除了頭會昏昏重重的
我要繼續有信心、有勇氣地面對接下來的挑戰,
為了恢復健康,這點苦不算什麼的:)
--
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化療
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