26歲鼻咽癌三期 - 化療
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By Xanthe
at 2020-12-11T01:12
at 2020-12-11T01:12
Table of Contents
該從哪裡說起呢,我目前是在某國營企業工作,24歲剛過就考上,工作環境說真的不算太好但同事上司都很好
然後在今年年初的時候有健康檢查,有個環節是醫生會詢問一些問題然後在脖子上摸,就發現我脖子上有個腫塊於是叫我去檢查一下
因為之前剛拔過智齒而且腫塊還是在同一邊我就想會不會是發炎之類的,但想說為了保險還是預約了附近診所的門診
兩天後的傍晚,打了個噴嚏之後就感覺有東西卡在鼻腔裡面,因為沒辦法從鼻孔弄出來我就往下吸然後從嘴裡吐出來
誰知道是一堆的血,這時鼻血也開始流,吐出來的東西裡有一塊大約0.5立方公分的半透明帶血絲的物體
我把它裝進夾鏈袋冷藏然後隔天帶去耳鼻喉科門診,醫生一開始判斷可能是息肉然後把我轉診到大醫院
大醫院的醫生看了之後臉色就不太好做了切片並要我有心理準備
結果幾天後去看報告確認是鼻咽癌
心情當然是不可能好,當時有點想瞞著父母,尤其我爸肝癌狀況不是很好,想說自己解決
但是仔細想想這怎麼可能瞞的住阿,最後還是開了家庭會議,之後為了治療方便決定回老家治療,公司也給了很長一段時間的病假
去了台南市的某間知名醫院,家人用了某種手段掛到了號,醫生內視鏡看完之後也看了病理報告後就直接要我馬上住院檢查
經過一連串痛苦的檢查之後確定是鼻咽癌三期
和醫生討論之後是先做自費的化療在去做放療,醫生和個案管理師都幫我打氣說鼻咽癌其實算是容易治療的癌症
一開始我還充滿信心,我堅信不管任何難關我都能突破直到打了第一劑化療
沒記錯似乎是柏金和健擇吧,反正我第一劑化療吐的亂七八糟持續了四天,腎功能也掉了不少
但是打了之後不到一周脖子上的本來可以依稀看到的腫塊就消失了,我和家人都懷疑效果有這麼好嗎
然後就是6次的化療不斷地吐每次都在換止吐藥,不是沒用就是打嗝副作用然後還是吐了
血腫科醫生也表示我快變成他看過反應最劇烈的案例了
之後的狀況就不說了 基本上就是吐 然後好不容易熬完了自費化療的部分
放療本來以為會好一點結果並沒有,當時為了減少副作用選了自費的螺旋刀但是第一天做完放療半夜還是吐了
醫生表示吐應該和放療沒關係,但我每天晚上都吐止有沒有去治療的六日沒事,然後更糟的事情來了
同步的化療開始了,醫生一開始就很懷疑我有沒有辦法做完全程
然後被猜到了,我第三週就在味覺喪失喉嚨痛和嘔吐的摧殘下體重掉了太多化療停了
整個放療後半我幾乎都是在醫院度過的,因為我幾乎每天都在吐,本來要插鼻胃管但醫生也覺得作用有限就沒有弄了
除了打點滴也強逼著自己喝營養品,雖然每喝一口喉嚨就像被刀割一樣
脖子開始因為放療出現傷口,睡覺時脖子壓迫讓本來就脆弱的皮膚大量的裂開
最糟糕的是到最後一週還莫名其妙的發燒,打了好幾劑抗生素還好似乎不是感染
在這期間我爸因為胃出血住院,我媽必須照顧我爸但我的狀況又不可能讓我一個人在醫院
真的很感謝我舅舅和表弟跑來照顧我,尤其我的癌症險還是我小時候我舅舅幫我買的,老實說真不知道該怎麼感謝他們。
放療結束之後又住了快10天醫生才讓我出院,體重從本來的70公斤掉到了53公斤
9月中結束放療之後就一直在家休養,現在已經可以吞固體食物了,雖然唾液還是不夠多
味覺也還沒完全恢復,甜味變得很微弱,少了甜味真的很痛苦
雖然一直有在做脖子的運動但是淋巴還是有在堆積,脖子一直腫腫的
但是最打擊我的是我爸爸在11月中因為肝癌過世了,雖然身體狀況和體力已經恢復許多但是要應付那堆傳統儀式還是很痛苦
我爸對抗肝癌有五年了,今年狀況老實說很糟糕,剛出院就被爸爸叫去聽遺囑老實說真的對我的精神狀況不是很好
對於我爸的離開老實說我有的只有不捨沒有難過,今年狀況就一直很不好,老實說我也很擔心他是否有辦法撐過今年
尤其到最後全身插滿管子意識已經開始模糊,那種狀況我實在想不出讓他繼續受苦的理由
還好家人也都同意不搶救,雖然我本來是希望他在安寧病房但最後在他自己本人堅持下還是回家走完最後一程
結束了那個麻煩的傳統儀式之後我媽本來失眠的狀況也改善許多,因為要照顧我爸她五年來常常睡不好
然後今天(12/11)是我要回醫院照核磁共振的日子,希望照出來沒什麼奇奇怪怪的東西
熬夜打了這一篇老實說是希望在記憶還深刻的時候給自己留個紀錄,治療期間寫的日記現在打開只有滿滿對這世界的詛咒
如果治療順利應該會把用剩的營養品送一送,到時候應該還會再另外發一篇吧
不常在PTT發文,希望格式不會太奇怪
希望大家身體健康,也希望我身體健康
--
然後在今年年初的時候有健康檢查,有個環節是醫生會詢問一些問題然後在脖子上摸,就發現我脖子上有個腫塊於是叫我去檢查一下
因為之前剛拔過智齒而且腫塊還是在同一邊我就想會不會是發炎之類的,但想說為了保險還是預約了附近診所的門診
兩天後的傍晚,打了個噴嚏之後就感覺有東西卡在鼻腔裡面,因為沒辦法從鼻孔弄出來我就往下吸然後從嘴裡吐出來
誰知道是一堆的血,這時鼻血也開始流,吐出來的東西裡有一塊大約0.5立方公分的半透明帶血絲的物體
我把它裝進夾鏈袋冷藏然後隔天帶去耳鼻喉科門診,醫生一開始判斷可能是息肉然後把我轉診到大醫院
大醫院的醫生看了之後臉色就不太好做了切片並要我有心理準備
結果幾天後去看報告確認是鼻咽癌
心情當然是不可能好,當時有點想瞞著父母,尤其我爸肝癌狀況不是很好,想說自己解決
但是仔細想想這怎麼可能瞞的住阿,最後還是開了家庭會議,之後為了治療方便決定回老家治療,公司也給了很長一段時間的病假
去了台南市的某間知名醫院,家人用了某種手段掛到了號,醫生內視鏡看完之後也看了病理報告後就直接要我馬上住院檢查
經過一連串痛苦的檢查之後確定是鼻咽癌三期
和醫生討論之後是先做自費的化療在去做放療,醫生和個案管理師都幫我打氣說鼻咽癌其實算是容易治療的癌症
一開始我還充滿信心,我堅信不管任何難關我都能突破直到打了第一劑化療
沒記錯似乎是柏金和健擇吧,反正我第一劑化療吐的亂七八糟持續了四天,腎功能也掉了不少
但是打了之後不到一周脖子上的本來可以依稀看到的腫塊就消失了,我和家人都懷疑效果有這麼好嗎
然後就是6次的化療不斷地吐每次都在換止吐藥,不是沒用就是打嗝副作用然後還是吐了
血腫科醫生也表示我快變成他看過反應最劇烈的案例了
之後的狀況就不說了 基本上就是吐 然後好不容易熬完了自費化療的部分
放療本來以為會好一點結果並沒有,當時為了減少副作用選了自費的螺旋刀但是第一天做完放療半夜還是吐了
醫生表示吐應該和放療沒關係,但我每天晚上都吐止有沒有去治療的六日沒事,然後更糟的事情來了
同步的化療開始了,醫生一開始就很懷疑我有沒有辦法做完全程
然後被猜到了,我第三週就在味覺喪失喉嚨痛和嘔吐的摧殘下體重掉了太多化療停了
整個放療後半我幾乎都是在醫院度過的,因為我幾乎每天都在吐,本來要插鼻胃管但醫生也覺得作用有限就沒有弄了
除了打點滴也強逼著自己喝營養品,雖然每喝一口喉嚨就像被刀割一樣
脖子開始因為放療出現傷口,睡覺時脖子壓迫讓本來就脆弱的皮膚大量的裂開
最糟糕的是到最後一週還莫名其妙的發燒,打了好幾劑抗生素還好似乎不是感染
在這期間我爸因為胃出血住院,我媽必須照顧我爸但我的狀況又不可能讓我一個人在醫院
真的很感謝我舅舅和表弟跑來照顧我,尤其我的癌症險還是我小時候我舅舅幫我買的,老實說真不知道該怎麼感謝他們。
放療結束之後又住了快10天醫生才讓我出院,體重從本來的70公斤掉到了53公斤
9月中結束放療之後就一直在家休養,現在已經可以吞固體食物了,雖然唾液還是不夠多
味覺也還沒完全恢復,甜味變得很微弱,少了甜味真的很痛苦
雖然一直有在做脖子的運動但是淋巴還是有在堆積,脖子一直腫腫的
但是最打擊我的是我爸爸在11月中因為肝癌過世了,雖然身體狀況和體力已經恢復許多但是要應付那堆傳統儀式還是很痛苦
我爸對抗肝癌有五年了,今年狀況老實說很糟糕,剛出院就被爸爸叫去聽遺囑老實說真的對我的精神狀況不是很好
對於我爸的離開老實說我有的只有不捨沒有難過,今年狀況就一直很不好,老實說我也很擔心他是否有辦法撐過今年
尤其到最後全身插滿管子意識已經開始模糊,那種狀況我實在想不出讓他繼續受苦的理由
還好家人也都同意不搶救,雖然我本來是希望他在安寧病房但最後在他自己本人堅持下還是回家走完最後一程
結束了那個麻煩的傳統儀式之後我媽本來失眠的狀況也改善許多,因為要照顧我爸她五年來常常睡不好
然後今天(12/11)是我要回醫院照核磁共振的日子,希望照出來沒什麼奇奇怪怪的東西
熬夜打了這一篇老實說是希望在記憶還深刻的時候給自己留個紀錄,治療期間寫的日記現在打開只有滿滿對這世界的詛咒
如果治療順利應該會把用剩的營養品送一送,到時候應該還會再另外發一篇吧
不常在PTT發文,希望格式不會太奇怪
希望大家身體健康,也希望我身體健康
--
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at 2021-02-08T11:16
at 2021-02-08T11:16

By Regina
at 2021-02-12T03:19
at 2021-02-12T03:19

By Hedda
at 2021-02-16T15:42
at 2021-02-16T15:42

By Rachel
at 2021-02-17T16:05
at 2021-02-17T16:05

By Lydia
at 2021-02-18T07:50
at 2021-02-18T07:50

By Xanthe
at 2021-02-20T15:47
at 2021-02-20T15:47

By David
at 2021-02-22T02:43
at 2021-02-22T02:43

By Kumar
at 2021-02-23T08:53
at 2021-02-23T08:53

By Daph Bay
at 2021-02-25T01:45
at 2021-02-25T01:45

By Steve
at 2021-02-28T19:14
at 2021-02-28T19:14

By Charlotte
at 2021-03-01T09:14
at 2021-03-01T09:14

By Ethan
at 2021-03-03T04:56
at 2021-03-03T04:56

By Quanna
at 2021-03-05T21:58
at 2021-03-05T21:58

By Anthony
at 2021-03-10T16:43
at 2021-03-10T16:43

By Madame
at 2021-03-15T11:21
at 2021-03-15T11:21

By Carolina Franco
at 2021-03-17T15:08
at 2021-03-17T15:08

By Agatha
at 2021-03-20T17:02
at 2021-03-20T17:02

By Tristan Cohan
at 2021-03-21T12:24
at 2021-03-21T12:24

By Charlie
at 2021-03-24T01:04
at 2021-03-24T01:04

By Liam
at 2021-03-27T20:06
at 2021-03-27T20:06

By Edwina
at 2021-03-31T14:51
at 2021-03-31T14:51

By Wallis
at 2021-04-01T10:55
at 2021-04-01T10:55

By Aaliyah
at 2021-04-03T09:21
at 2021-04-03T09:21

By Elma
at 2021-04-07T15:46
at 2021-04-07T15:46

By Rae
at 2021-04-09T22:55
at 2021-04-09T22:55

By Kristin
at 2021-04-12T05:39
at 2021-04-12T05:39

By Genevieve
at 2021-04-16T11:29
at 2021-04-16T11:29

By Doris
at 2021-04-17T07:41
at 2021-04-17T07:41

By Xanthe
at 2021-04-21T09:24
at 2021-04-21T09:24

By Bennie
at 2021-04-23T06:38
at 2021-04-23T06:38

By Belly
at 2021-04-25T23:01
at 2021-04-25T23:01

By Skylar Davis
at 2021-04-29T09:28
at 2021-04-29T09:28

By Genevieve
at 2021-05-04T03:49
at 2021-05-04T03:49

By Xanthe
at 2021-05-08T00:21
at 2021-05-08T00:21

By Sarah
at 2021-05-12T19:18
at 2021-05-12T19:18

By Kama
at 2021-05-15T13:03
at 2021-05-15T13:03

By Irma
at 2021-05-16T21:34
at 2021-05-16T21:34

By Tracy
at 2021-05-21T10:49
at 2021-05-21T10:49

By Andy
at 2021-05-23T09:02
at 2021-05-23T09:02

By Heather
at 2021-05-27T14:08
at 2021-05-27T14:08

By Valerie
at 2021-06-01T04:47
at 2021-06-01T04:47

By Erin
at 2021-06-03T03:41
at 2021-06-03T03:41

By Brianna
at 2021-06-07T23:05
at 2021-06-07T23:05

By Noah
at 2021-06-11T01:10
at 2021-06-11T01:10

By Skylar DavisLinda
at 2021-06-13T05:39
at 2021-06-13T05:39

By Freda
at 2021-06-15T17:49
at 2021-06-15T17:49

By Adele
at 2021-06-20T05:51
at 2021-06-20T05:51

By Suhail Hany
at 2021-06-24T23:26
at 2021-06-24T23:26

By Gary
at 2021-06-29T05:12
at 2021-06-29T05:12

By Suhail Hany
at 2021-07-02T10:53
at 2021-07-02T10:53

By Sarah
at 2021-07-04T08:10
at 2021-07-04T08:10

By Megan
at 2021-07-09T02:00
at 2021-07-09T02:00

By Christine
at 2021-07-12T01:39
at 2021-07-12T01:39

By Quanna
at 2021-07-16T06:48
at 2021-07-16T06:48

By Ivy
at 2021-07-20T07:06
at 2021-07-20T07:06

By Christine
at 2021-07-22T16:44
at 2021-07-22T16:44

By Candice
at 2021-07-22T19:41
at 2021-07-22T19:41

By Thomas
at 2021-07-25T00:25
at 2021-07-25T00:25

By Elizabeth
at 2021-07-27T16:04
at 2021-07-27T16:04

By Isla
at 2021-07-29T17:29
at 2021-07-29T17:29

By Caitlin
at 2021-08-03T08:46
at 2021-08-03T08:46

By Aaliyah
at 2021-08-07T09:34
at 2021-08-07T09:34

By Edith
at 2021-08-09T08:45
at 2021-08-09T08:45

By Callum
at 2021-08-13T22:57
at 2021-08-13T22:57

By Callum
at 2021-08-18T20:58
at 2021-08-18T20:58

By Tracy
at 2021-08-21T10:36
at 2021-08-21T10:36

By Thomas
at 2021-08-21T13:14
at 2021-08-21T13:14

By Iris
at 2021-08-21T21:03
at 2021-08-21T21:03

By Dora
at 2021-08-24T05:43
at 2021-08-24T05:43

By Kama
at 2021-08-26T03:23
at 2021-08-26T03:23

By Joseph
at 2021-08-27T14:08
at 2021-08-27T14:08

By Ingrid
at 2021-08-30T02:22
at 2021-08-30T02:22

By Hedda
at 2021-09-01T01:14
at 2021-09-01T01:14

By George
at 2021-09-02T03:56
at 2021-09-02T03:56

By Kumar
at 2021-09-03T00:00
at 2021-09-03T00:00

By Freda
at 2021-09-06T17:47
at 2021-09-06T17:47

By Joe
at 2021-09-07T15:41
at 2021-09-07T15:41

By Dorothy
at 2021-09-11T15:50
at 2021-09-11T15:50

By Lauren
at 2021-09-12T02:56
at 2021-09-12T02:56

By Erin
at 2021-09-16T06:07
at 2021-09-16T06:07

By Edith
at 2021-09-20T13:17
at 2021-09-20T13:17

By Aaliyah
at 2021-09-23T11:50
at 2021-09-23T11:50

By David
at 2021-09-25T12:07
at 2021-09-25T12:07

By Rae
at 2021-09-28T01:30
at 2021-09-28T01:30

By Adele
at 2021-09-30T08:02
at 2021-09-30T08:02

By Valerie
at 2021-10-04T10:54
at 2021-10-04T10:54

By Zenobia
at 2021-10-06T20:02
at 2021-10-06T20:02

By Hardy
at 2021-10-07T14:35
at 2021-10-07T14:35
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By Odelette
at 2021-10-08T21:09
at 2021-10-08T21:09
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By Damian
at 2021-10-12T07:35
at 2021-10-12T07:35
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By Mason
at 2021-10-16T08:49
at 2021-10-16T08:49
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By Donna
at 2021-10-20T13:37
at 2021-10-20T13:37
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By Kama
at 2021-10-25T03:25
at 2021-10-25T03:25
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By John
at 2021-10-28T02:05
at 2021-10-28T02:05
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By James
at 2021-10-29T16:55
at 2021-10-29T16:55
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By Isabella
at 2021-10-31T08:47
at 2021-10-31T08:47
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By Thomas
at 2021-11-02T06:20
at 2021-11-02T06:20
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By Aaliyah
at 2021-11-02T22:06
at 2021-11-02T22:06
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By Liam
at 2021-11-04T20:47
at 2021-11-04T20:47
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By Harry
at 2021-11-07T20:54
at 2021-11-07T20:54
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By David
at 2021-11-10T22:07
at 2021-11-10T22:07
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By Robert
at 2021-11-14T18:07
at 2021-11-14T18:07
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By Queena
at 2021-11-15T14:13
at 2021-11-15T14:13
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By Connor
at 2021-11-18T19:04
at 2021-11-18T19:04
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By Dinah
at 2021-11-19T02:56
at 2021-11-19T02:56
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By Hedda
at 2021-11-19T04:52
at 2021-11-19T04:52
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By Aaliyah
at 2021-11-20T03:52
at 2021-11-20T03:52
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By Sierra Rose
at 2021-11-24T00:49
at 2021-11-24T00:49
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By Kama
at 2021-11-27T04:59
at 2021-11-27T04:59
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By Zanna
at 2021-11-28T23:20
at 2021-11-28T23:20
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By Leila
at 2021-12-01T22:00
at 2021-12-01T22:00
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By Elma
at 2021-12-05T12:32
at 2021-12-05T12:32
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By Daniel
at 2021-12-08T14:29
at 2021-12-08T14:29
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By Selena
at 2021-12-12T11:20
at 2021-12-12T11:20
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By Leila
at 2021-12-14T07:24
at 2021-12-14T07:24
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By Joe
at 2021-12-14T23:39
at 2021-12-14T23:39
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By Blanche
at 2021-12-18T08:26
at 2021-12-18T08:26
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By Sierra Rose
at 2021-12-22T00:17
at 2021-12-22T00:17
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By Mason
at 2021-12-26T21:32
at 2021-12-26T21:32
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By Anthony
at 2021-12-28T17:14
at 2021-12-28T17:14
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By Agnes
at 2021-12-31T03:12
at 2021-12-31T03:12
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By Franklin
at 2022-01-02T07:51
at 2022-01-02T07:51
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By Charlotte
at 2022-01-06T17:54
at 2022-01-06T17:54
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By Blanche
at 2022-01-06T22:22
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By Lydia
at 2022-01-07T08:24
at 2022-01-07T08:24
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By Mary
at 2022-01-11T02:32
at 2022-01-11T02:32
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By Kelly
at 2022-01-13T01:32
at 2022-01-13T01:32
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By Isabella
at 2022-01-15T22:17
at 2022-01-15T22:17
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By Anonymous
at 2022-01-17T06:38
at 2022-01-17T06:38
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By Quintina
at 2022-01-20T10:29
at 2022-01-20T10:29
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By John
at 2022-01-20T22:04
at 2022-01-20T22:04
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By Frederic
at 2022-01-24T11:49
at 2022-01-24T11:49
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By Charlie
at 2022-01-26T10:17
at 2022-01-26T10:17
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By Harry
at 2022-01-29T23:27
at 2022-01-29T23:27
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By Mason
at 2022-01-31T13:17
at 2022-01-31T13:17
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